|
Care Issues
Care News
MDCH-HAPIS
Documents
New Resource: Michigan Go Local
Wayne State University's Shiffman Medical Library staff has put together a
tremendous new resource for locating HIV/AIDS related services in Michigan on
the Internet. Linked through the National Library of Medicine (NLM), the
Michigan Go Local resource is part of a large National Institutes of Health
project and is connected to Medline Plus.
Assistance and
Benefits
CARE Act
Drugs
- Drug Assistance Program DAP
-
Resources: Drug Images Added to Drug Fact Sheets
AIDSinfo
recently added images of anti-HIV medications to the drug information fact
sheets found in the
Drugs section of the Web site. Clicking on the drug icon(s) located to the right of a drug's name opens a
larger image of the tablet, capsule, or bottle.
AIDSinfo:
Drug Databa
- Guides to Side
Effects
- Report
hoaxes to CDC
Treatment
MDCH-HAPIS
Documents
- Michigan’s Part B 2009 Statewide
Coordinated Statement of Need -
PDF File
- Michigan's
2009 Care Comprehensive Plan -
PDF File
- For
complete information on MDCH-DHWDC-HAPIS Care Programs see the new MDCH
website at www.michigan.gov/hivstd
Medical
PWA Issues
See also Research News and
Resources
resources for PLWHA
The (former) Michigan Persons Living with HIV/AIDS Needs
Task
Force Web site has a wealth of resources and information for
PLWH/As, their caregivers and case managers.
Physicians: Looking for assistance with HIV patient treatment? See
Resources in the Medical and Clinical section.
Adherence Video
The Michigan adherence work group has produced a video to assist physicians in
discussing the issues of drug adherence. The video is available by calling the MI AIDS Hotline 1-800-872-2437.
Also, AIDS
Partnership Michigan has developed one of the first drug programs in the country
to help clients achieve full adherence to complex drug regimens. The program
also established mechanisms for monitoring possible side effects of the drugs as
well as aspects of the patient's daily life.
TREATMENT ADHERENCE: FAMILY SUPPORT HELPS HIV PATIENTS STICK TO DRUG REGIMEN
Kaiser HIV/AIDS Report (4/14) Self-confidence and support from family and friends help HIV patients keep up with their complicated drug regimens, according to a study in the March issue of Health Psychology. Researchers from the Medical College of Wisconsin interviewed 72 men and women taking highly active antiretroviral therapy, finding that "those who lacked social support or weren't confident that they could manage their drug regimen were less likely to comply with their treatment." Study author Dr. Sheryl Catz of the Wisconsin university said, "The results suggest that patients taking HIV medications should be regularly monitored to identify any barriers to (taking their drugs on schedule)." Such comprehensive care "means giving patients easy access to an 'interdisciplinary team' of doctors, nurses, social workers, psychologists and dieticians," she added (Reuters Health, 4/12).
Ask 'The Body'
Your HIV Questions Answered, FREE!
Ever wish you could ask an HIV specialist a question anytime you wanted, anonymously and from the privacy of your home? Wish no longer! At the Body Pro's "Ask the Experts" forums, you can ask whatever's on your mind, and one of their top HIV health professionals will answer -- free of charge! You can also search through our massive archive of previously asked questions on everything from starting treatment to mental health to having a baby when you're HIV positive.
http://www.thebody.com/experts.shtml
HIV Medications: When to Start and What to
Take
Order this booklet from The Body
http://www.thebody.com/content/art12718.html
Got a question specifically about starting HIV treatment? Meet Dr. Gerald Pierone, Jr., The Body's newest expert and the founder of an AIDS research and treatment center in Fort Pierce, Fla. He joins Drs. David Wohl and Ben Young to provide you with the answers to your treatment questions.
http://www.thebody.com/Forums/AIDS/Starting/index.html
CARE Act
New TARGET Web Site Centralizes Ryan White CARE Act
Technical Resources
The TARGET (Technical Assitance Resources, Guidance, Education and Training)
Center Web site and Help Desk are resources that centralize an array of
technical assistance resources for Ryan White CARE Act grantees and HIV/AIDS
Bureau (HAB) staff. The Help Desk is available online or via phone at:
301-443-0067. TARGET resources include those developed by the Health Resources
and Services Administration (HRSA) HAB as well as other grantees:
Best Practices Technical Assistance Library
Links to CARE Act Grantees
Online and Phone Help Desk
Check out the TARGET Web site today!
http://careacttarget.org/
AIDSinfo At-a-Glance: Volume Issue No. 52
Care for Children and
Infants
Caring for an HIV-Positive Child
If you're caring for an HIV-positive child, one of the important decisions
you'll make will be choosing a doctor and a program
that will provide the best care. The National Pediatric and Family HIV
Resource Center offers some tips on how to get the best care possible for
HIV-positive children.
www.thebody.com/nphrc/wellcare.html
FAQ on Pediatric AIDS
Frequently asked questions and answers concerning pediatric AIDS, from The National Pediatric and Family HIV Resource
Center.
www.thebody.com/nphrc/questions/contents.html
Case Management
See the current DHWDC Case Management
Training Schedule
PWA
Confidentiality
"Shut UP! Project"
This was a project of the former MAX (Michigan Advocates Exchange) that was
invented to distribute materials describing the HIV confidentiality law around
the state, to allow people to deal with violations of their privacy. That
project died when MAX closed. "Shut Up Project" actually had three tools: (1)
the "Shut Up" article for people living with HIV that explained their rights and
responsibilities, (2) the "Shut Up" cards with a summary of the confidentiality
law on one side and MAX's contact info on the other, and (3) the "Shut Up"
letter that could be sent by anybody to anybody else with a big mouth. I've done
some updating.
Former MAX ED Kendra Kleber, JD announced on February 8, "The 'Shut Up' article
has been updated, and it is still a great introduction to legal rights for a
person living with HIV. The 'Shut Up' letter has morphed into another article,
this one targeted at the 'blabber.' It has a completely different tone from the
old version, and now is an explanation of the confidentiality law for somebody
with no background. The 'Shut Up' card is gone."
These new articles will be posted on Kleber's website www.positiveoutlook.org,
on a new "Shut Up!" section. Each article is just two pages, which means that
you could print them double-sided to save paper.
Kleber now has a private practice, Kendra S. Kleber & Associates PLLC,
supporting the self-sufficiency, independence and quality of life of people
living with HIV/AIDS
by providing those who are disabled and unable to work with creative and
effective legal representation on claims for Social Security disability
benefits, nationwide. You may contact her at P.O. Box 1960, Royal Oak, Michigan
48068-1960
248-591-0301 248-548-7909 (fax);
kkleber@positiveoutlook.org
Clinical Trials
AIDSinfo The HIV/AIDS Clinical Trials Information
Service (ACTIS) and the HIV/AIDS Treatment Information Service
(ATIS) merged into AIDSinfo. This provides quick and easy access to wide-ranging federal
resources on HIV/AIDS clinical research, HIV treatment and
prevention, and medical practice guidelines for health care
providers and consumers. For more information, visit
www.AIDSinfo.nih.gov.
NIH UNVEILS 'CONSUMER FRIENDLY' CLINICAL TRIALS WEB SITE In March, NIH launched
http://clinicaltrials.gov/
-- its "consumer-friendly" database of more than 4,000 federal and private medical studies, including those on HIV/AIDS. The database includes information about the location of clinical trials, their design, criteria for participation, and in many cases, further information about the disease and treatment under study. (NIH release, 2/29).
This Little Medication Goes to Market, But This Little Med Stays
Home
How does a new HIV medication get approved in the United States? How long
does the approval process take, and what factors can make or break a prospective
drug? Tim Horn of ACRIA Update offers this in-depth explanation of the many
steps that must be taken before a prescription drug can be sold in the United
States. Web highlight rom What's New at the Body (10/26/04)
http://www.thebody.com/cria/fall04/fda_approval.html?m70h
Michigan Dental Care Program
See the MDCH web site for more information on this program
www.michigan.gov/hivstd direct link:
http://www.michigan.gov/mdch/0,1607,7-132-2940_2955_2982_46000_46001-45691--,00.html
Other Programs in Michigan
There are several places in Michigan where individuals with HIV/AIDS can receive
subsidized dental care. The University of Michigan Dental School is one place that all
clients pay on an ability to pay basis and identification as HIV positive is not necessary
for treatment. Individuals or case managers may call (734) 763-6933. The
HIV/AIDS Resource Center in Ypsilanti, (734) 572-9355, is now the fiduciary for
this service at U of M for clients in Regions 1 -8 seeking dental care.
Also, the University
of Detroit-Mercy has a clinic specifically for persons with HIV/AIDS who live in the
Metro-Detroit area. Clients must have confirmed positive on an HIV test. Most are referred
by physicians but some do come in on their own. The clinic has a leading edge professional
staff for AIDS dental care.
HIVDENT Visit this site for
information on oral manifestations of HIV disease (with photos), treatment, infection
control and post-exposure protocol.
DENTAL HEALTH AND HIV
Why is dental care important for people living with HIV? Terry Wilder
explains why, in AIDS Survival News.
www.thebody.com/asp/dec00/dental.html
Got questions about dental health and HIV? Ask The Body's online expert, Dr. David
Reznik. www.thebody.com/cgi/oralans.html
Disabilities
Information
Comprehensive Website for People with Disabilities
Social Security touches the lives of people with disabilities every day. That’s
why we joined 21 other federal agencies to create
www.disabilityinfo.gov .
Disabilityinfo.gov is a comprehensive website designed to offer people with
disabilities access to important information they can use. Disabilityinfo.gov is
a one-stop website — not only for people with disabilities, but also for older
Americans, employers, Social Security beneficiaries, community- and faith-based
service providers and others. Disabilityinfo.gov features information on a
number of related topics. The site is easy to navigate, and is organized into
subject areas, including benefits, civil rights, community life, education,
employment, health, housing, technology and transportation.
Assistance Applying for Social Security
Kendra S. Kleber JD, Kendra S. Kleber & Associates PLLC
Focusing on HIV/AIDS-based Social Security disability claims, and developing
legal strategies and policy to enhance the self-sufficiency, independence and
quality of life of people living with HIV/AIDS. Nationwide.
P.O. Box 1960, Royal Oak, MI 48068; email
kkleber@positiveoutlook.org ,
248-591-0301
www.positiveoutlook.org
Guide on Housing and the CARE Act
"Housing is Health Care," a new HRSA/HAB guide on implementing the
Bureau's housing policy regarding use of CARE Act funds for housing-related services,
explains the flexibility of HAB Policy 99-02 (Use of CARE Act Funds for Housing Referral Services and Short-term or Emergency Housing Needs). It
outlines three implementation areas: housing categories to use in allocations and applications; record keeping and documentation; and
funding/program changes. Case studies on integrating housing funds under
the CARE Act and HOPWA (Housing Opportunities for People with AIDS) are also featured. Additional resources in the guide include a history of HIV/AIDS
housing in the U.S.; planning under the CARE Act and HOPWA; a statement from HAB Administrator Dr. Joseph O'Neill on the role of housing in a changing
epidemic; and technical resources available on housing.
The guide, produced in partnership with AIDS Housing of Washington, can be obtained from the HAB web site "Tools" page at: http://hab.hrsa.gov
(go to the "Select a Topic" pop up menu and click on "Homelessness
and HIV") or the HRSA Information Center at 1-888-ASK-HRSA.
Administration of Michigan's Housing Opportunities for Persons With AIDS program has
changed from the Division of HIV/AIDS -STD to the Bureau of Community Living, Children and
Families, directed by Virginia Harmon.
Hospital Care
New information provides consumers with standardized assessments of the care
that nearly 4,200 hospitals across the country provide to all adult patients,
based on valid and reliable measures that have been shown to reflect quality of
care. Hospital Compare is available on the Internet at
www.hospitalcompare.hhs.gov
or www.medicare.gov . Consumers without
web access can call 1-800-MEDICARE (1-800-633-4227) to get the same information
on hospital quality.
Hospice Care
Hospice Advantage provides comprehensive, compassionate care and comfort to
people living with a terminal illness. Everyone deserves to live in comfort
and dignity throughout their lives. Hospice Care helps ensure that those with a
life-limiting illness live everyday to its fullest, by tending to their
physical, emotional and spiritual needs. Care is provided at home, in
hospitals, nursing homes and other residential facilities. All of us at Hospice
Advantage believe strongly in our mission of helping patients and their
families, and we’re committed to ensuring that end of life is free from pain and
other symptoms so that their remaining time is as rewarding as possible.
Michigan offices in Bay City, Detroit, Flint, Milford, Sheboygan, and Lansing
see
www.hospiceadvantage.net
Online Health Insurance Portability and Accountability Act
http://www.mihivnews.com/resource_national.htm#HIPPA
Insurance Information Institute
http://www.iii.org/home.html
Offers answers to consumers' questions on all types of
insurance and
provides an archive of insurance related news.
Insurance Assistance Program
The Michigan Insurance Assistance Program enables individuals with HIV/AIDS to continue
health insurance coverage where in many cases the insurance would have lapsed because of
economic hardships. This program has insured that the relationship and care that a client
has had with his/her physician be allowed to continue with no sudden changes or
disruption. Also see DAP, for information on Michigan's Drug
Assistance Program.
Effective 6/10/08: In order to clarify the
prescription eligibility requirement for the Insurance Assistance Plus Program (IAP-Plus),
the following definition will be used:
An applicant must be eligible for a private insurance policy with FULL
prescription coverage.
Full prescription coverage is defined as prescription coverage with no annual
maximum limit.
Please refer to the Insurance Assistance Program Pamphlet for additional
eligibility requirements.
Please contact Monty Davenport, Insurance Assistance Program, Program Analyst
with any questions that you may have: phone: (313) 456-3882; Fax: (313)
456-1680;
davenportm@michigan.gov
There is one
application for both IAP programs.
You can find the application published at:
www.michigan.gov/dhs-forms.
Insurance Portability
Online Health Insurance Portability and Accountability Act
http://www.mihivnews.com/resource_national.htm#HIPPA
From: The Private Health Insurance Group (PHIG) at The Health Care
Financing Administration (HCFA)
Help consumers find out how their health coverage is affected by life
events such as: job changes, marriage, divorce, birth, adoption or death.
Online help to answer health coverage questions is now available!
Are you aware of the Federal health coverage protections under the Health
Insurance Portability and Accountability Act of 1996 (HIPAA)?
If you field client or employee questions about: pre-existing conditions,
special enrollment, certificates of creditable coverage, or how to cope
with the denial or loss of health coverage, a welcome new tool has arrived.
A confidential, free, easy-to-use, 24-hour-a-day, Internet-based tool
called HIPAA OnLine helps answer consumer questions rapidly and accurately
on the Federal health coverage protections provided by HIPAA.
HIPAA OnLine responds directly to individual concerns about health coverage
by guiding users through a series of questions that often lead to local
resources for more information.
To request a CD, click on the Help icon on the HIPAA
OnLine Web page or send an e-mail to hipaacd@saic.com
(quantities are
limited).
Additional Resources
HCFA is making another information product available. "Protecting
Your
Health Insurance Coverage" is a 45 page booklet outlining five key steps
that consumers can take to understand their Federal health coverage
protections under HIPAA. You may order
single hard copies by calling
1-800-633-4227. For 2-100 hard copies, fax
your request to 1-410-786-4786. For more than 100 hard copies, fax your
request to 1-410-786-1905.
In addition, the Georgetown University Health Policy Center also offers a
user-friendly, widely-praised, interactive, state-specific HIPPA site at
www.healthinsuranceinfo.net .
MEDICAID
Final Rules on Medicaid Beneficiary Protections
Published
from the Kaiser HIV/AIDS Report 1/19/01
HHS published new regulations in the Federal Register requiring "greater
patient protections" for beneficiaries enrolled in Medicaid managed care plans.
The regulations, which will be enforced by HCFA, implement provisions of the
1997 BBA, and will take effect 90 days after publication. The rules include
strengthened beneficiary protections and new provisions "designed to protect the
rights of otherwise vulnerable" Medicaid beneficiaries. HHS says that among the
"most important improvements" are increased protections for those with special
needs. Published regulations for Medicaid managed care plans include the
following:
Quality Care: States will be required to assure continued care access for
Medicaid beneficiaries who have "ongoing health care needs" and switch from
fee-for-service to a managed care plan, from one health plan to another or from
a health plan to fee-for service. In addition, states and participating plans
must identify beneficiaries with "special health care needs" and "assess the
quality and appropriateness" of their care.
Health Assessment: Medicaid managed care plans must provide expedited health
assessments to beneficiaries "at risk of having special health care
needs" or to those who already have special health care needs.
Health Plan Marketing: Medicaid managed care plans must provide consumers
with "comprehensive, easy-to-understand information" about heath plans
and offer "most" beneficiaries a choice between at least two
"qualified" health plans. States must also approve health plan
marketing materials used to enroll and re-enroll Medicaid beneficiaries, and
plans are restricted from engaging in "door-to-door, telephone and other
forms of 'cold call' marketing."
Emergency Services: Medicaid managed care plans are required to cover
emergency health care service costs "wherever and whenever the need for
such services arises." Plans "are prohibited" from requiring
prior approval for emergency services or from requiring beneficiaries to obtain
care at "approved facilities." Emergency services are "based on a
'prudent layperson' standard that requires payment in situations where the
beneficiary reasonably assumes that he or she is in an emergency
situation."
Reimbursement: States are required to set managed care capitation rates that
are "actuarially sound." The new regulations omit the "generally
outdated regulatory ceiling on what states may pay managed care plans." An
HHS release notes that this provision is "particularly important," as
"more state Medicaid programs include people with chronic illnesses and
disabilities in managed care" who require more expensive care. This
provision implements a "new approach" to regulating capitation
payments, and will have a 60-day comment period.
Access to Care: Female beneficiaries may have "direct access" to a
woman's health specialist within a health plan's provider network for routine
and preventive health care services. Also, beneficiaries will be allowed to
obtain a second opinion from a "qualified" health professional.
Patient-Provider Communication: Medicare managed care plans may not impose
restrictions, such as "gag rules" that interfere with patient-provider
communications.
Network Adequacy: Plans must "assure" that they maintain the
capacity to serve the "expected enrollment" in their service area.
Grievance Systems: Managed care plans must implement a system to address
appeals and grievances, and all grievances must be resolved in "state
established time frames" not exceeding 90 days. Resolution of appeals must
occur "in accordance with medical needs," and not later than 30 days.
"Expedited" time-frames of no more than 72 hours are required for
certain grievances and appeals."
Fulfilling a Promise
These regulations "fulfil[l]" President Clinton's promise to
"extend a Patients' Bill of Rights to all Americans enrolled in public
health care programs," the HHS release states. Outgoing HHS Secretary Donna
Shalala added, "Managed care provides the promise of better coordinated
health care at a more reasonable cost. But all Americans -- whether they are in
Medicare, Medicaid or private health plans -- deserve the basic protections that
a Patients' Bill of Rights provides" (HHS release, 1/18)
See new Federal Guidelines
See The Managed Care in Michigan 2001 Review
AIDS Action has on line publications
including: Mgd Care and HIV/AIDS, a guide for CBO's; Stigma and HIV Prevention;
Medicaid/Medicare Dual Eligibility for people with HIV/AIDS
http://www.aidsaction.org/communications/publications/index.html
Interactive Tools on Medicaid
From the Kaiser Commission on Medicaid and the Uninsured
The Kaiser Commission on Medicaid and the Uninsured presents the State Medicaid
Fact Sheets and the Medicaid Benefits Online Database, two interactive tools
featuring the latest key data, information and services provided for each
state’s Medicaid program. Both tools allow for easy access to the data which can
then be printed, saved and emailed.
STATE MEDICAID FACT SHEETS
http://cme.kff.org/Key=9643.z0.C.C.NxKlpp
Michigan:
http://www.kff.org/mfs/medicaid.jsp?r1=MI&r2=US
This new interactive online tool provides the latest key data for each state’s
Medicaid program and the population it serves, allowing for easy comparisons of
one state to any other state or to the nation as a whole, on a selection of
important indicators. Utilizing the latest Medicaid data from the Kaiser
Commission on Medicaid and the Uninsured and drawn directly from Kaiser's
continuously updated site for state health data, statehealthfacts.org, this tool
provides figures and tables that can be easily printed as customized fact
sheets, emailed or saved.
MEDICAID BENEFITS ONLINE DATABASE
http://cme.kff.org/Key=9643.z0.H.C.NmhmxT
Michigan:
http://kff.org/medicaid/benefits/state.jsp?nt=on&cat=0&yr=0&st=23
This interactive tool provides easy access to information on services provided
by each state's Medicaid program. The database contains Medicaid benefits survey
data from 2003 and 2004 with information about benefits covered, limits,
co-payments and reimbursement methodologies for the 50 states, the District of
Columbia and the Territories.
The tool allows for searches by state or service and permits comparisons between
2003 and 2004 information. Customized searches and the options of printing,
emailing or saving search results are also available.
Fact Sheets: Getting the Best Out of Managed Care
These illustrated fact sheets are designed for a general audience and are
available in English and Spanish versions. The files are
available in Word, HTML, and PDF (Adobe Acrobat) formats.
Feel free to print out these documents and reproduce them. The PDF files
are the best suited for reproduction.
The Center for Health Care Strategies (CHCS), in Lawrenceville, NJ,
provided funding for "Making Sense of Managed
Care Quality Information for Consumers with Special Needs." This project
was made possible through a separate grant to
CHCS by The Robert Wood Johnson Foundation.
Fact Sheet 1: How can this information help me? (¿Cómo puede ayudarme esta
información?)
Fact Sheet 2: Understanding Quality Measures (Comprenda las Medidas de
Evaluación de la Calidad)
Fact Sheet 3: Figuring Out Which Health Care Plan Meets Your Needs
(Determine qué Plan de Atención
de Salud Responde a sus Necesidades)
Fact Sheet 4: Report Cards (Boletas de Calificaciones)
Fact Sheet 5: Consumer Surveys (Encuestas de Consumidores)
Michigan is currently switching its Medicaid system over to managed care. For more
information on managed care and medicaid to managed care background please see the John Hopkins website.
A company called Maximus has been contracted by the Michigan Department of Community
Health to enroll Medicaid participants in the new managed care system. The program
operated by Maximus, called Michigan Enrolls, will assist individuals in making this
transition.
If you need help with reading, writing, hearing, etc., under the Americans with
Disabilities Act, you are invited to make your needs known to Michigan Enrolls.
Michigan Enrolls can:
- Tell you which doctors, pharmacies and hospitals are part of each health plan.
- Give you information to help you choose a primary provider.
- Answer questions you may have about how to get medical services through your health
plan.
- And, enroll you in the health plan you choose.
If you are a medicaid client living in southeastern Michigan, you should have received
the managed care health plan information.
If you have any questions, you may call Michigan Enrolls at:
1-888-ENROLLS (1-888-367-6557 or
TTY: 1-888-263-5897. This call is free.
Most people who get Medicaid must choose a health plan. If you do not choose a plan,
Michigan Enrolls will choose one for you.
There are five ways to enroll in a health plan:
1. Call: Michigan Enrolls at one of the above numbers.
2. Mail: The enrollment form that has been/will be sent to you.
3. Go to a community meeting.
4. Visit an enrollment office.
5. Ask for a home visit, if it is difficult for you to leave your
home.
Medicare
Medicare Savings
for Qualified Beneficiaries
Help with Paying Medicare Premiums, Deductibles and Co-Insurances for 2009
Feds allow Medicare participants to access records on line.
-
View claim status
(excluding Part D claims),
-
Order a duplicate
Medicare Summary Notice (MSN) or replacement Medicare card,
-
View eligibility,
entitlement and preventive services information,
-
View enrollment
information including prescription drug plans,
-
View or modify your
drug list and pharmacy information,
-
View address of
record with Medicare and Part B deductible status, and
-
Access online forms,
publications and messages sent to you by CMS.
http://www.mymedicare.gov/
Mental health
Winter 2007 Issue of "Mental Health AIDS" Includes Tool
Box on Posttraumatic Growth of HIV Infected Individuals
Biopsychosocial therapy involves assessing an individual patient's biological,
psychological, and social condition to help determine treatment. Mental Health
AIDS is a quarterly biopsychosocial research update on HIV and mental health
sponsored by the Center for Mental Health Services (CMHS) of the Substance Abuse
and Mental Health Services Administration (SAMHSA). This publication is provided
free of charge through the SAMHSA Web site in both PDF and HTML formats.
The Winter 2007 issue features the From Surviving to Thriving: HIV-Associated
Posttraumatic Growth tool box, which summarizes recent research on posttraumatic
growth (PTG) and HIV. Emotional trauma related to HIV infection, including
depression, anxiety, fear, helplessness, and guilt, may lead to positive changes
in relationship and life priorities, health behaviors, and outlook on life in
some individuals with HIV infection (and in some cases, their caregivers). The
toolbox includes suggestions for clinicians on how to incorporate principles of
PTG into psychotherapy treatment for trauma survivors. AIDSinfo At-a-Glance:
Volume Issue No. 52
Nutrition and HIV
AIDS Education and Training Center’s
Health Care and HIV: Nutritional Guide for Providers and Clients
ABCNews.com/Healthology Press (12.14.01)::Meredith Liss, MA, RD,
CDN, New York Presbyterian Hospital, Weill Cornell
Use of highly active antiretroviral therapy (HAART) to
treat
HIV disease has improved immune status for those people who have
access to the drugs and can tolerate them. However, maintaining a
good physical appearance and overall health continue to be
significant concerns for most patients.
People with HIV must contend with body composition
changes
that include wasting syndrome and fat redistribution syndrome as
well as metabolic changes such as elevated levels of cholesterol,
triglycerides and blood sugars. While many of these conditions
require medication, developing a healthy diet and exercise
program can make a great difference in longevity and the quality
of life.
Good nutrition should be taken seriously as co-therapy
for
HIV. Diet recommendations include a high protein diet to fight
wasting syndrome; a heart healthy, low saturated fat diet to keep
cholesterol levels within proper limits; and a diet high in whole
grains and low in sugar to maintain adequate blood sugar and
triglyceride levels. Also included should be 1-2 multi-vitamins
with minerals to insure that micronutrient needs are met...
To reduce cholesterol levels, decrease intake of foods
high
in saturated fat like red meat, poultry skin, whole and 2 percent
milk, cheese, butter, coconut and palm oils.
One of the causes of weight loss in HIV infection is
not
being able to eat enough calories. You may find that you get
hungry and when you sit down to eat, you become full too fast.
There are some medical causes of early fullness but a pattern of
small, frequent meals of six or more a day will probably help a
great deal. Also, high calorie, high protein shakes of ice cream,
yogurt, milk, fruits, peanut butter, wheat germ and fruit nectars
or canned supplements that can be purchased at local drug stores
and supermarkets are highly recommended as meal alternatives.
Exercise is safe and does not weaken the immune system.
It
is important to prevent or fight the loss of muscle mass and to
offset the effects of the fat redistribution syndrome.
Nursing Homes
HHS Web Site Allows Consumers To Compare
Nation's 17,000 Nursing Homes
http://www.kaisernetwork.org/daily_reports/rep_index.cfm?DR_ID=14570
Patient Advocacy
Deciphering Medical Terminology
Sometimes HIV specialists, HIV caseworkers -- even some HIVers --
talk about the virus with words that seem impossible to understand:
"pharmacokinetics," "co-formulation," "sequencing." Here's a list of
some of the most often-used HIV-related terms and their definitions.
http://www.thebody.com/pw/glossary.html
Guide to Side Effects
Drugs used to treat HIV and AIDS can be a double-edged sword. While they
may do a good job of controlling HIV and treating AIDS-related
diseases,
they are also associated with problems of their own: side
effects.
Community Research Initiative on AIDS has put together a handy little
booklet on side effects and how to make sense of standard
treatments and
complementary therapies to manage them.
www.thebody.com/cria/sideeffects/contents.html
"Fight AIDS at Home," www.fightaidsathome.or,
uses existing connections on the
Internet to link personal computers to a network that compares anti-AIDS drugs against genetic variations to find the best one.
Downloadable software from Entropia allows personal computers to help evaluate AIDS drugs. The software, called
AutoDock, runs
when the computer is not processing other data. Users should be aware of their privacy needs and research the project before
taking part.
New List Serve
There is a new list serve available for Case Managers, Social Workers, Nurse
Managers, Dieticians, Nutrition Managers, and other related fields.
The same
staff that is overseeing the HIV-Doc and HIV-Law list will also take on
this list. The list manager is ezmlmis.
The email address is socwkr@lists.boygeniuse.com
To subscribe send an EMPTY email message to:
socwkr-subscribe@lists.boygenius.com
You will get a response message that you have to reply to, and you will be
all set.
NEW PATIENT PROTECTIONS IN MEDICAID MANAGED CARE
RULE
HCFA reports those enrolled in Medicaid managed care plans will have greater
patient protections under new regulations published in the January 19, 2001
Federal Register (Volume 66, Number 13, Pages 6227-6426)
http://www.hhs.gov/news/press/2001pres/20010118.html
Social Security Cost-of-Living Raises
Cost-of-living adjustments for 2001 announced by Social Security; for the details: www.thebody.com/apla/jan01/cola.html
The new poverty levels for 2001 have just been
announced
These are used for eligibility for the Medicaid, CHIP, WIC, food stamp,
school lunch and the programs which pay Medicare premiums for those who are
slightly "too rich" for Medicaid (QMB, SLMB, QI [I], QI [II] and QDWI),
as
well as a host of other state-run programs.
For the 48 states and DC, the one person level is $8590 ($715.83 monthly);
add $3020 yearly ($251.66 monthly) for each additional family member.
Patient's HIPAA Privacy Notice
Since HIPAA took effect on April 14, 2003, each of your health care providers (including dentists) should have provided you with a Privacy Notice. If you read it, you would discover the ways that the HCP will "use" your protected health information WITHOUT asking your permission.
More on this subject.
Physician's Desk Reference (PDR)
This resource has "information on every conceivable medication, and the
search engine on this site will return results that are even just close to what
you've entered. That means that if you have the spelling remotely close, you can
probably find what you need.
Use this, for instance, to double-check the spelling and purpose of medications
when filling out a Social Security disability application.."
http://www.healthsquare.com/drugmain.htm
Kendra S. Kleber, JD
President, Director of Legal Services
Michigan Advocates Exchange, Inc.
DETROIT - POWER OF WORK SUPPORT GROUP. The Power of Work (POW) Support Group
continues to meet every other Thursday at Goodwill Industries, 3111 Grand River,
Detroit, MI from 5:30pm-7:30pm. This group’s focus is to learn to live again
with HIV/AIDS while exploring options of returning to work, school or training.
Participants are asked to bring a dish to share with the group. For more
information, contact Rick Jones at 313-964-3900 ext. 423. Project HOPE (HIV
Opportunities for Pursuing Employment) has partnered with Goodwill Industries of
Greater Detroit. They have hired a full time Vocational Services Coordinator and
are in the process of applying for new grants to help with the return to work
issues for people living with HIV.
For more information or to find out how returning to work will affect your
benefits, call Ken Pape at the Family Independence Agency, (313) 456-1678, to
schedule an appointment for benefits counseling.
Return to Work Incentive
Biggest change in HIV benefits since passage of the Ryan White Act in 1990.
The Ticket to Work and Work Incentives Improvement Act of 1999 has
numerous, complex provisions affecting SSDI, SSI, Medicare, Medicaid,
return-to-work and vocational rehabilitation services for disabled persons. It
offers states a set of interrelated options for enhanced Medicaid coverage of
disabled persons who work. It limits---but does not fully eliminate---the threat
of being found "no longer disabled" for those patients in remission
who are work ready or are already actually working. AIDS agencies and even
businesses can now get federal funding for return-to-work,
benefits counseling and vocational rehabilitation services. Click here for
the full article by Tom Mcormick
ON SOCIAL SECURITY
If you are on disability and considering starting a business or working on your own, you should know that Social Security's regulations
favor self-employment. Learn the details from AIDS Project
Los Angeles.
www.thebody.com/apla/nov00/work.html
TUITION FOR DISABLED
Tuition tips for the disabled: A crash course in scoring financial aid for college while you are on disability.
www.thebody.com/apla/nov00/benefits.html
Social Security Benefits On-line
Another Guide to Social Security Benefits for People
Living with HIV/AIDS
Per Kendra Kleber: A new
document from the Social Security Administration (SSA), "Social Security
Benefits for People Living with HIV/AIDS," describes how people living with
HIV/AIDS can apply for benefits under two SSA programs: Social Security
Disability Insurance (SSDI) and Supplemental Security Income (SSI).
The document covers: eligibility for benefits; disability definitions; how to
file for benefits; questions asked during the eligibility process; how
eligibility determinations are made; how to expedite processing of claims; and
what happens if recipients return to work. This new document replaces another
SSA publication geared toward PLWH, "A Guide to Social Security and SSI
Disability Benefits for People with HIV Infection," which has been discontinued
and is no longer available.
To view the document go to:
http://www.ssa.gov/pubs/10019.pdf
.
A Better Guide to HIV/AIDS-Related Social Security Benefits
According to Kendra S. Kleber JD, of the law office of Kendra S. Kleber &
Associates, the Social Security Administration is currently revising the rules
used to evaluate disability benefits claims based on HIV/AIDS. The rules have
been in place since 1995, but will soon incorporate clearer guidance about the
impact of many manifestations of HIV infection that were not known before HAART.
The guidebook "Social Security Secrets," written by Kleber for people disabled
by HIV/AIDS and originally made available by Michigan Advocates Exchange (MAX),
explains the disability benefits programs and strategies for supporting a
benefits claim. The book is available at
www.positiveoutlook.org .
Guide to HIV/AIDS-Related Social Security
Benefits Now Available
View Social Security Administration
Publications online at
http://www.socialsecurity.gov/pubs/englist.html
Did you know people living with HIV/AIDS (PLWH/A) can qualify for
certain disability benefits from the Social Security Administration (SSA)? If
not, then you need to read the SSA publication, Social Security Benefits for
People Living with HIV/AIDS. The booklet describes how PLWH/A can apply for
benefits under two SSA programs: Social Security Disability Insurance (SSDI) and
Supplemental Security Income (SSI), and covers the following topics:
Benefits You May Be Able to Get; What We Mean by Disabled; How to File for
Benefits; What We Will Ask; How We Make a Decision on Your Claim; How You Can
Help Speed up Your Claim; What We Are Doing to Help You Get Benefits Faster;
What Will Happen If You Go Back to Work
Documentation for
Benefits
There are a few documents that people absolutely need to have at some point
in their lives -- a birth certificate may be the best example, but marriage or
death certificates, and perhaps a divorce decree, could be other essential
documents. The fact is that in order to apply for Social Security benefits (and
for a number of other reasons) you will probably need at least one of these
documents, either the original or a copy certified by the state that issued it.
Figuring out where to go to find the certified copies you need could be
confusing -- until now. With this online resource you can find the addresses and
phone numbers of the issuing offices as well as the fees for the documents you
need. So even a person born in Alabama, married n California, divorced in Utah
and retired in Florida can find everything he or she needs at the link below.
http://www.socialsecurity.gov/vitalstats.html
Treatment Guidelines
National Treatment Guidelines
http://www.aidsinfo.nih.gov
Also AmFar
Treatment Directory
Guides to Side-Effects
The National Minority AIDS Council NMAC has published the Patient's
Guide to HIV Medicines and Guidelines for Their Use, a pamphlet meant to
make topics such as HIV/AIDS and combination therapy more understandable
to non-medical persons.
Also, see AIDSmeds.com's Currently Approved Drugs for HIV: A
Comparative Chart
http://www.aidsmeds.com/lessons/DrugChart.htm
Community Research Initiative on AIDS has put together a handy little
booklet on side effects and how to make sense of standard
treatments and
complementary therapies to manage them.
www.thebody.com/cria/sideeffects/contents.html
Report Health Rumors to the CDC
The Centers for Disease Control and Prevention has developed
a Web site, www.cdc.gov/hoax_rumors.htm,
to dispel concerns
about new diseases or drug safety scares that travel the
Internet. Mostly spread by concerned people who pass e-mail
messages about health issues to their friends, the good
intentions of Web users have a tendency to create an "urban
legend," or completely false safety scare. They range from
non-existent food contamination to date-rape drugs that exist
only in the mind of the message creator, or HIV-infected needles
stuck into movie theater seats. After receiving 250 phone calls
and 500 e-mails per week for just one hoax, the CDC opted to
create its informational Web site to combat the myths. According
to CDC spokesman Tom Skinner, "So many of the hoaxes used the CDC
as a supporting voice of authority in their messages, so we
decided to make a formal response."
User Friendly Manual for PWAs
The highly regarded USER FRIENDLY MANUAL for people living with HIV/AIDS has been updated. This is the indispensable handbook for
PWA/Hs, their friends & care providers.
PWH/A Reference Guide
Copies of the PWH/A Reference Guide are now available on CD-ROM. CD’s
may be picked up at the MAPP office at 429 Livernois, Ferndale, MI during normal
business hours.
- Medical & Health Information
- Basic Needs (Food, Housing, Employments
- Benefits (Social Security, Medical Insurance, Legal)
- Counseling & Support Services
- Internet Resources & much more . . .
The USER FRIENDLY MANUAL is also a directory of addresses & phone
numbers to many metropolitan Detroit area organizations of HIV/AIDS services.
|